About Us
About 2 1/2 years ago I was sitting on a hospital bed listening to a woman tell me about my 2 day old son with Down syndrome. "They are usually slower, they need more help, they usually don't walk until they are over 24 months old, they learn slower, etc. . . . You will have to get involved in programs to help him along."
As she left the room I just sat there not really knowing what to think. The prognosis seemed so bleak for my son. Slow, helpless, no hope of him ever doing anything in the normal sense of things. A life that I would just be carting around to a bunch of specialists, while I just sat back and watched them work with my son.
As time went on, we discovered otherwise. That is why we put this book together. It is written with the hope that anyone involved with someone that has Down syndrome will be able to think differently than I did that day in the hospital. It is not compiled and written to tell you what you won't be able to do or what the person with Down syndrome can't do.
This book is written to inform you about Down syndrome and to give you hope. It is written to tell you all that you can do for someone with Down syndrome. It has stories in it from those with Down syndrome so that you can see that they can live normal, and sometimes, extraordinary lives. In these pages you will find the information, the facts, the stories and the encouragement to think differently about down syndrome. This book is about Down syndrome and What You CAN Do.
Kimberly Fish
Contact Kim at kim@gotdownsyndrome.net
As she left the room I just sat there not really knowing what to think. The prognosis seemed so bleak for my son. Slow, helpless, no hope of him ever doing anything in the normal sense of things. A life that I would just be carting around to a bunch of specialists, while I just sat back and watched them work with my son.
As time went on, we discovered otherwise. That is why we put this book together. It is written with the hope that anyone involved with someone that has Down syndrome will be able to think differently than I did that day in the hospital. It is not compiled and written to tell you what you won't be able to do or what the person with Down syndrome can't do.
This book is written to inform you about Down syndrome and to give you hope. It is written to tell you all that you can do for someone with Down syndrome. It has stories in it from those with Down syndrome so that you can see that they can live normal, and sometimes, extraordinary lives. In these pages you will find the information, the facts, the stories and the encouragement to think differently about down syndrome. This book is about Down syndrome and What You CAN Do.
Kimberly Fish
Contact Kim at kim@gotdownsyndrome.net
My brother, now 2 ½ years old, was diagnosed with Down syndrome at birth. I knew nothing about Down syndrome. When I started looking around at information, what I found was bleak, grim and did not provide hope, truth and reality. The information we received was things that he “wouldn’t” do, or “won’t” do until a certain time, it wasn’t things that he could do and it wasn’t reality. It was outdated information.
We soon found out that my brother would sit at 9 months old, he would pull to stand at 13 months old, he would crawl at 13 months old, he would walk at 17 months old, instead of the long list of things that he “wouldn’t” do. He exceeded the “information” we were given. This is something that happens all too often. Professionals do not have truthful and hopeful information to give the new parents and family, but instead have outdated and inaccurate information and therefore have little to no hope to offer new parents and family.
People with Down syndrome can do a lot. One thing you will find in this book are stories from people with Down syndrome who have excelled in many areas and live lives like many other people who do not have Down syndrome. You will also find information that I wish we would have heard when my brother was born, but instead did not hear it until he was 8 months old.
Because of what I’ve seen and been through, I wanted to write a book full of truthful information and facts to give new parents and families a true view and a hope. It is also to give and show professionals of all sorts what you can do when there is a diagnosis of Down syndrome. Give parents hope, not a grim, uninformed picture.
Qadoshyah Fish
Contact Qadoshyah at qf@gotdownsyndrome.net
We soon found out that my brother would sit at 9 months old, he would pull to stand at 13 months old, he would crawl at 13 months old, he would walk at 17 months old, instead of the long list of things that he “wouldn’t” do. He exceeded the “information” we were given. This is something that happens all too often. Professionals do not have truthful and hopeful information to give the new parents and family, but instead have outdated and inaccurate information and therefore have little to no hope to offer new parents and family.
People with Down syndrome can do a lot. One thing you will find in this book are stories from people with Down syndrome who have excelled in many areas and live lives like many other people who do not have Down syndrome. You will also find information that I wish we would have heard when my brother was born, but instead did not hear it until he was 8 months old.
Because of what I’ve seen and been through, I wanted to write a book full of truthful information and facts to give new parents and families a true view and a hope. It is also to give and show professionals of all sorts what you can do when there is a diagnosis of Down syndrome. Give parents hope, not a grim, uninformed picture.
Qadoshyah Fish
Contact Qadoshyah at qf@gotdownsyndrome.net